ZIGZAG,ZIGZAG IN THE CORNER OF EACH EYE,
THEN THE NECK CRACKS AND CREAKS AND STIFFENS,
THEN COMES THE SNEEZING,
WORLD RECORDING SNEEZING,
A MYSTERY TO ME,
AND THEN THE DULL LURKING PAIN UPON MY RIGHT BROW,
THE BEGINNING OF THE TRAUMA TO FOLLOW,
YET SOME ARE PHANTOMS,
AND NEVER REACH THEIR GROWTH,
BUT THE WAITING AND EXPECTING IS TRAUMA IN ITSELF,
THOUGH RELIEF WHEN THE FULL FORCE OF ONE IS WITHHELD,
AND I THANK GOD AND THE GODDESS FOR A STAY OF TRAUMA,
THIS TIME AT LEAST,
THE SLEEP CLUSTERS ARE A RUDE AWAKENING,
WITH MUCH CONFUSION WHEN THEY STRIKE,
FROM SLEEP TO EXTREME PAIN IS AN EXPERIENCE OF THE TWILIGHT KIND,
AN EXHAUSTED DAY THEN FOLLOWS,
BUT WORST OF ALL ARE THE DAYLIGHT ONES,
THE BEASTS OF MY MIND,
THESE ARE THE WARRIORS OF THE CLUSTER KINGDOM,
THE RULERS OF MY BROKEN MIND,
THEIR PAIN IS WITHOUT FULL EXPLANATION IN HUMAN WORDS,
THOUGH WOMEN WHO SUFFER FROM THE CLUSTER ATTACK SYNDROME SAY,
"NOT EVEN CHILD BIRTH COMES CLOSE,"
A FULL BLOWN CLUSTER IS EXTREME PAIN,
TRAUMA,
AND WISHING FOR DEATH TO COME QUICKLY,
IT REDUCES THE HOST TO TEARS OF PLEADING FOR HELP FROM ABOVE,
WHILE THOSE AROUND ARE AT A LOSS WHAT TO DO,
AS THEY SUGGEST AND ADVISE IN VEIN,
I REMOVE MYSELF FROM ALL TO SOLITARY PAIN,
BETTER THAN TELLING A FRIEND TO FCUK UP OR FCUK OFF DUE TO THE TRAUMA OF THE MOMENT,
I SEARCH FOR COLD AIR,
MY SOULS WAY OF TRYING TO HELP,
THOUGH VEIN IT IS WITH A RESTLESS FLESH
EVEN THOUGH MY SOUL KNOWS COLD AIR IS A PART HELP,
BUT ONLY A PART,
THEN THE VOMITING STARTS ON TOP OF THE TRAUMA,
DISTRESS AND STRESS,
REMOVING THAT WHICH IS WITHIN,
WHILE ALL THE TIME THE SINUS'S ARE FILLING,AND EMPTYING,
INCREASING THE PAIN WITH EACH SNEEZE,BLOW AND SNIFF,
STANDING WITH HEAD IN HAND AGAINST THE NEAREST WALL,
RUBBING TEMPLE IN HOPE OF RELIEF,
WHILE MY SINUS TRACKS CRACK AND MOVE,
SOME LAST 15 MINS SOME 8 HOURS,
SOME ARE ONE AFTER ANOTHER,
BUT ALL ARE EXTREME PAIN,
AS EXTREME AS IT GETS UPON THIS EARTH,
SLOWLY THE PAIN DECREASES,
THOUGH AFTER 8 HOURS OF ULTIMATE PAIN,
THERE IS LITTLE REST,
AT TIMES THE AFTERMATH IS A TRAUMATIC UNTIL IT IS COMPLETE,
THEN WOW,
THE RELEASE AND RELIEF,
THE CLOSEST I CAN EXPLAIN IT,
AND I DO TO MY FRIENDS WITH AN APOLOGY FIRST IS,
"ITS LIKE HAVING A ORGASM,"
ONLY BY EXPERIENCING A CLUSTER HEADACHES COULD YOU EVER UNDERSTAND THE MEANING OF MY EXPLANATION OF RELIEF WHEN ONE FINALLY DEPARTS,
OTHER PARTS OF CLUSTER HEADACHE EFFECTS,
ENDLESS CRYING,
LOSS OF PARTNER,
FAMILY,
FRIENDS,
JOB,
LIFE.
DAY,
NIGHTS,
ISOLATION,
LACK OF UNDERSTANDING,
SPENDING A FORTUNE ON TOILET PAPER,
SPRAYS,
TABLETS,
HEADACHE STICKS,
ENDLESS RETURNS TO DOCTORS,
NEUROLOGISTS,
QUACKS,
PSYCHOLOGISTS,
AND ENDLESS DRUGS INTAKE.
THIS ONLY EXPLAINS A FRACTION OF THE EFFECTS OF A CLUSTER HEADACHE,
TAKE ALL ABOVE AND MULTIPLY IT BY 100'S,AND THEN SOME.
I HAVE BEEN SUFFERING CLUSTER HEADACHES FOR 8 YEARS NOW, DUE TO TRAUMATIC BRAIN INJURY, OR ACQUIRED BRAIN INJURY AS IT IS CALLED.
THOUGH FOR 4 1/2 YEARS OF THOSE 8, I HAD TO SEARCH OUT THE REASON FOR MY HEADACHES, WITH MY FIRST NEUROLOGIST, BECAUSE I SPOKE TO MY PSYCHOLOGISTS ABOUT SPIRITUAL THINGS, TELLING ME, "YOU HEADACHES ARE ALL IN YOU HEAD."
I TOLD ALL MY DOCTORS THE EXTREME PAIN, DISTRESS, TRAUMA, DEPRESSION, ISOLATION, AND SUICIDAL LIFE I WAS GOING THROUGH, BUT BECAUSE OF A NEUROLOGIST, WHO IS HUMAN, AND PRONE TO MISTAKES, AS MANY WRONG DIAGNOSIS OF CONDITIONS HAVE SHOWN OVER MANY CENTURIES AND DECADES, BECAUSE OF ONE REPORT, AND JUST ONE MRI, I WAS CONDEMNED TO SUFFER FOR 4 1/2 YEARS OF LOST FAMILY, FRIENDS, WORK, FREEDOM, HOPE, AND ALMOST, AFTER LOST LIFE, AFTER TAKING TO MUCH MEDICATION TO TRY AND EASE THE PAIN, AT LEST :(
EVENTUALLY, A NEUROLOGIST FROM THE ULSTER CLINIC AND CRAIGAVON HOSPTIAL EMAILED ME, TELLING ME, 'I HAD CLUSTER HEADACHES, AND HE COULD HELP ME;
AND THIS AFTER MOVING GP'S 3 TIMES, PSYCHOLOGISTS AND PSYCHIATRISTS THINKING, BECAUSE OF SPIRITUAL MATTERS I'D REVEALED, THAT I WAS MAD.
SO FOR 4 1/2 YEARS, OF EXTREME PAIN, TRAUMA, DISTRESS, DEPRESSION, SUICIDAL THOUGHTS DUE ALL THE ABOVE, LOSING WORK, FAMILY, FRIENDS, PARTNERS, FREEDOM, HOPE, AND SELF-RESPECT, I WAS TREATED WITH SUMATRIPTAN TABLETS ONLY :(
JUST BEFORE I WAS GOING TO LET THE NEUROLOGIST FROM NORTHERN IRELAND, WHO CONTACTED ME VIA EMAIL SEE ME, I RECEIVED AN APPOINTMENT FROM THE GP I'D LEFT 2 YEARS PREVIOUS, BECAUSE OF LACK OF HELP, DUE TO A WRONG DIAGNOSIS OF, "YOUR HEADACHES ARE ALL IN YOUR HEAD, YOU IMAGINING THEM," AND THE APPOINTMENT WAS FOR THE ROYAL HOSPITAL, NEUROLOGY.
I THANKED THE NEUROLOGIST ON-LINE FOR HIS OFFER OF HELP, AND EXPLAINED I HAD JUST RECEIVED AN APP FOR NEUROLOGY IN THE ROYAL VICTORIA HOSPITAL, THOUGH I THINK HE WAS NOT HAPPY, AFTER OFFERING ME HELP, BUT THE ROYAL HOSPITAL IN BELFAST WAS CLOSER, AND EARLIER THAN CRAIGAVON, AND WITH DOZENS OF HEADACHES PER WEEK, I WAS NOT GOING TO MISS MY APPOINTMENT, REGARDLESS FROM WHICH GP IT CAME FROM, OR THE YEARS THAT HAD PASSED.
I WAS EITHER A SECOND OPINION, AND CORRECT DIAGNOSIS, OR DEATH :(
I HAD STUDIED THIS CONDITION SINCE I FIRST ACQUIRED IT, AND KNEW I WAS SUFFERING FROM CLUSTER HEADACHES, AFTER TALKING TO THOUSANDS ON-LINE, WHO SUFFER FROM CLUSTER HEADACHES, INCLUDING MANY NEUROLOGISTS, PSYCHOLOGISTS, PSYCHIATRISTS AND GP'S.
I SHOWED MY NEW NEUROLOGIST, DR.WATT, FROM THE ROYAL VICTORIA HOSPITAL IN BELFAST, THE PHOTOS OF WHAT HAPPENS DURING AN ATTACK/CLUSTER HEADACHE, AND EXPLAINED IN DETAIL, WHAT HAPPENS, FROM BEGINNING TO END OF EACH HEADACHE, AND WITHIN 20 MINS, DR.WATT SAID, "YOU HAVE CLUSTER HEADACHES.'
I CRIED, BECAUSE FOR THE FIRST TIME, IN 6 YEARS OF SUFFERING TO WORST PAIN, AND CONDITION KNOWN TO DOCTORS AND MEN AND WOMEN, SUDDENLY, A CONSULTANT, DOCTOR, HUMAN BEING WAS LISTENING TO ME, AND KNEW THE CAUSE OF THIS LIFE THREATENING CONDITION CALLED, CLUSTER HEADACHES :)
INSTANTLY, MY MEDICATION INCLUDED, OXYGEN, IMIGRAN INJECTIONS, MAXITRAM, TEMAZEPAM AND SOON ANESTHETIC PAIN RELIEF, AND FAILING THAT, DEEP BRAIN STIMULATION :)
SO FROM NO HELP AT ALL, AND A WRONG DIAGNOSIS, TO EVERY KIND OF HELP THERE IS WITHIN THIS WORLD OF NEUROLOGY.
I STILL SUFFER CLUSTER HEADACHES DAILY, BUT AT LEAST NOW, IN 2016, I AM UNDERSTOOD, AS IS MY CONDITION BY MY DOCTORS, DUE TO AN UNDERSTANDING AND CARING NEUROLOGIST, AND EVENTUALLY NEW GP'S LISTENING TO MY NEW, TRUE EXPERT IN THIS FIELD OF NEUROLOGY :)
I AM STILL NOT ABLE TO WORK, DUE TO CLUSTER HEADACHES, STUTTER, WORD ASSOCIATION AND MEMORY PROBLEMS, THOUGH THE LAST THREE I COULD LIVE WITH, IF MY NEUROLOGIST COULD CEASE MY CLUSTER HEADACHES.
EVEN WHEN OUT FOR A DAY, OR NIGHT, I NEVER GET THROUGH ONE, WITHOUT THE CLUSTERS, WHICH IN TURN HAVE TO BE INJECTED WITH IMIGRAN, WHICH IN TURN MAKES ME SICK, AND WISHING TO RETURN HOME :(
I USE TO ENTERTAIN, WHICH STOPPED 8 YEARS AGO :(
I STILL FUND RAISE FOR CHARITIES, WHICH I HAVE DONE SINCE I WAS 13, AND OVER THE LAST 3 YEARS, WITH THE HELP OF OTHERS HAVE RAISED 4000 ODD POUNDS FOR THE CHILDREN'S HOSPICE NI, JIGSAW NI, AND VARIOUS COMMUNITY NEEDS AND PROJECTS.
THOUGH RECENTLY THAT STOPPED FOR 3 MONTHS, DUE TO THE EXTREME LEVEL AND PAIN OF THE CLUSTERS, RESULTING IN AN ACCIDENTAL OVERDOSE OF PAIN KILLERS, WHICH ONCE MORE BROUGHT SWIFT ACTION FROM MY PSYCHIATRISTS, NEUROLOGIST AND GP'S :)
I AM WRITING A BOOK NOW, WHICH IS ABOUT THE MISSING TRUTH, THAT FEW KNOW ABOUT GOD AND THE GODDESS ALMIGHTY, THE HOLY SPIRIT, WHICH I SHOULD HAVE BEGUN 8 YEARS AGO, WHEN THE CLUSTERS AND OTHER CONDITIONS FIRST CONFINED ME, BUT WITH CLUSTERS AS MY CLOSE COMPANIONS, LITTLE IS DONE BUT SEARCHING FOR RELIEF, SOMETIMES AFTER 14 HOURS, OR MULTIPLE HEADACHES, AND HOURS OF RECOVERING, EVEN DAYS, WITH EACH HEADACHE OR CLUSTER OF THEM :(
I USE TO BE AN EXCELLENT PHOTOGRAPHER AS WELL, BUT EVEN THAT HAS CEASED, DUE TO CONFINEMENT :(
MY ANESTHETIC PAIN RELIEF BEGINS AT THE END OF JUNE 2016, 8 YEARS AFTER AFTER I ACQUIRED THIS LIFE THREATENING CONDITION CALLED CLUSTER HEADACHES :(
BETTER LATE THAN NEVER :)
I WILL WRITE MORE, WHEN THAT TIMES ARRIVES, WITH MR. GERRY BROWN :)
IN THE LAST 3 YEARS, WHEN I BEGAN TO COUNT THE CLUSTERS, DUE TO MY FIRST NEUROLOGIST LACK OF UNDERSTANDING AND CARE, I HAVE SUFFERED 1652 FULL BLOWN CLUSTER HEADACHES, WITH 3 IN THE LAST 24 HOURS :(
I SUFFER AROUND 7-15 PER WEEK, WITH SOMETIMES 2 DAYS BREAK AT TIMES :)
I HAVE NOTICED OVER THE LAST 8 YEARS THAT THE CLUSTERS REACT TO LOW PRESSURE IN THE WEATHER, SOMETIMES ARRIVING WITH EACH SHOWER OF RAIN.
THEY ALSO INTENSIFY IN SUMMER, AND WHEN TEMPERATURES SOAR, THE PAIN IS UNBEARABLE, LEAVING THE HOST TO SEEK SHADE AND COOL AIR, OXYGEN :(
I PRAY AND HOPE, BY JUNES END, RELIEF MIGHT BE FOUND, AND POSSIBLE AN ANSWER FOR OTHERS TO SEEK, IF SUCCESSFUL :)
DO NOT TAKE A FIRST OPINION AND MRI TO BE RIGHT, AND IF NEED BE, ASK FOR MULTIPLE OPINIONS AND MRI'S, IF SATISFACTION OR DIAGNOSIS SEEMS WRONG, AND USE YOU INTERNET/WWW TO SEARCH AND ASK OTHERS FOR THEIR OPINION AND AT TIMES FAR AWAY DIAGNOSIS OF THAT WHICH YOU SUFFER, AND REMEMBER, YOUR DOCTORS, BE THEY GP'S OR CONSULTANTS ARE BUT HUMAN, LIKE YOU AND ME, AND AS SUCH MAKE MISTAKES AND WRONG DIAGNOSIS'S, THOUGH I AM LUCKY, FOR ABOVE GUIDE AND HELP WITH MY PAIN, BUT MANY OTHERS HAVE LONG GIVEN UP, AND TAKEN THEIR OWN LIVES BECAUSE OF DOCTORS PLAYING GOD, LACK OF UNDERSTANDING AND CARE, AND MISDIAGNOSING THEIR FELLOW HUMAN BEINGS :(
HAVING MANY YEARS OF STUDY, COUNTLESS EXAMS AND MANY LETTERS AFTER YOUR NAME MEANS NOTHING IF YOU HAVE NOT GOT THE WISDOM AS YOUR GUIDE :(
14/05/2018.
AFTER NO CONTACT FROM MY NEUROLOGIST, DR WATT FROM THE RVH IN BELFAST, NORTHERN IRELAND, THE NATIONAL NEWS CAME ON TWO WEEKS AGO, WITH DR WATT HITTING THE HEADLINES ABOUT THE POSSIBLE OF SOME OF HIS PATIENTS BEING MISDIAGNOSED, WHICH SHOCKED ME BECAUSE DR WATT WAS SPOT ON WITH MY DIAGNOSES OF CLUSTER HEADACHES, WHICH MY FIRST NEUROLOGIST DIAGNOSED AS BEING ALL IN MY HEAD, IN OTHER WORDS, I WAS IMAGINING THEM AND HAD TO SUFFER SEVERAL YEARS OF EXTREME PAIN AND SUICIDAL.
DR WATT IN MY CASE, AND FROM WHAT I HEAR 100'S OF OTHERS CASES WAS AN EXCELLENT DOCTOR, FRIENDLY, CARING AND VERY PROFESSIONAL, WITHOUT WHOM I WOULD NOT BE HERE TODAY.
SINCE MY REVIEW LAST TUESDAY NIGHT AT THE RVH, I NOW HAVE TWO SCANS COMING, ONE FOR MY BRAIN, AND ONE FOR MY NECK, TO SEE WHAT MIGHT BE THE DAMAGE FROM MY ACQUIRED BRAIN INJURY/TRAUMA AND DAMAGE TO MY NECK, IF ANY, THOUGH DR WATT'S DIAGNOSES OF CLUSTER HEADACHES, IS CORRECT AND THANKFULLY MY MEDS REMAIN IN PLACE.
I HAVE NOTICED RECENTLY WHEN I FORGET TO TAKE MY EPHILIM TABLETS MY CLUSTER HEADACHES INCREASE DRAMATICALLY, WITH DOZENS ARRIVING IN DAYS, SO I AM TRYING NOT TO FORGET TO TAKE MY MEDS.
I AM SUFFERING BETWEEN 3-5 A DAY AT THE MOMENT AND THIS IS WITHOUT FORGETTING TO TAKE MY EPHILIM, SO LIFE IS STILL SHITE, ESPECIALLY BEING CONFINED INDOORS 24/7 AT TIMES.
MY BACK HAS BEEN OUT FOR TWO WEEKS AND I HAVE BEEN HAVING A LOT OF PROBLEMS WITH MY NECK AS WELL.
MY GP HAS NOW GIVEN ME MORPHINE TO SEE IF I CAN GET SOME KIND OF REST AT NIGHT AND DAY.
SOME WEEKS I AM WITHOUT SLEEP FOR 48 HOURS UNTIL EXHAUSTION FINALLY KNOCKS ME OUT FOR AN HOUR OR TWO BEFORE THE ONSET OF ANOTHER CLUSTER.
I AM ALSO ON OXYGEN AND IMIGRAN INJECTIONS, WHICH HELP AT TIMES AND AM TRYING CBD OIL IN THE HOPE IT MIGHT HELP FURTHER.
THE CBD OIL HAS CLEARED UP MY CHEST INFECTION, BUT THE CLUSTERS STILL ARE A DAILY CURSE IN MY LIFE.
MY FIRST MRI SCAN IS TOMORROW EVENING AT 5PM IN MUSGRAVE PARK HOSPITAL, BELFAST, NORTHERN IRELAND.
13/08/2018.
AFTER 12 WEEKS WAIT BETWEEN APPOINTMENTS WITH NEUROLOGY, I HAVE A NEW NEUROLOGIST, WHO HAS TOLD ME I HAVE CLUSTER HEADACHES AND SOME OTHER TYPE OF HEADACHE WITH A LONG NAME, WHICH I DO NOT REMEMBER, BUT WILL REVEAL WHEN MY NEXT APPOINTMENT TO GP ARRIVES IN TWO WEEKS.
THOUGH I HAVE BEEN PUT ON MELATONIN BECAUSE I TOLD THE NEUROLOGIST, WHEN ASKED HOW LONG A HEADACHE WOULD LAST, WHICH I REPLIED, "SOME LAST 9 HOURS OR MORE, UNLESS THEY ARE ONE CLUSTER GOING INTO ANOTHER," THIS IS WHY I AM NOW ON MELATONIN, THOUGH THE CLUSTERS ARE STILL COMING WITH LOW PRESSURE IN WEATHER AND ATLANTIC STORMS PILING IN ONE AFTER THE OTHER.
03/03/2019.
Well here we are in 2019 and the beginning of March 2019 and the cluster headaches are still as bad as they ever were with 4 overnight and this morning have used 2 Imigran Injections so far and oxygen but with storm Freya approaching Northern Ireland from the South the clusters or beasts of my mind will keep piling in as low pressure rules the roost.
Worse luck I am unable to get an appointment with my doctor for 2 a month now, with even the walk-in surgery being cancelled in my surgery, which has shocked many who attend the surgery.
So as for getting referrals to Neurology or any other department within the medical profession is impossible at the moment because for that to happen you need to see your GP.
It seems either Clifton Street Surgery, which was brilliant in care has either taken on too many patients or, are unable to cope with the volume of cases coming in to see them.
10/05/2019.
The cluster headaches are battering my brain every two hours at the moment, with extreme pain to boot, leaving me exhausted, traumatised and depressed.
Have also run out of oxygen after 3 clusters and my next supply does not arrive until June, plus Imigran injections are slowly disappearing.
I need to see Neurology asap, but with my GP surgery not having a walk in surgery anymore and appointments not available as they used to be, I am not struggling.
13/05/2019.
Spent five hours this morning bathing my head in ice cold water, which I find helps at times with the cluster headaches at times, but it is very exhausting sitting on a bath for hours at a time.
Have completely run out of Oxygen and Imigran Injections are running low after suffering at least 40 clusters from last Tuesday.
I am totally traumatized, depressed and distressed with the severity of the clusters this time.
I cannot get an appointment with any of my GP's, which means I cannot get an appointment with Neurology which is where I need to be to get extra Oxygen and possible more injections, or even a deep brain stimulation operation.
It is now over 13 years since my cluster headaches began and now I truly need help with this extreme pain before I end it all, because I just cannot go on anymore with this extreme pain every two hours or so.
21/05/2019.
After suffering from 12 plus cluster headaches per day in the last month I decided to appeal for help from my new Neurologist and Neurologist Dept, who got straight back to me.
I explained I was on the edge with this cycle of clusters and needed help ASAP, after one more night of extreme pain and suffering I got an emergency appointment with the brilliant Dr Puerkert from Neurology Dept RVH Belfast, Northern Ireland, who administered anaesthetic injections in frontal right lope, right side of skull and base of brain.
After treatment, I suffered 4 long clusters and used 3 Imigran Injections to help with easing it them through.
Now over the last week, I am averaging around 2-4 per day, which bathing in ice-cold water is helping with, and saving on Imigran Injections.
So here's hoping the severe cycle of clusters is over now with this latest episode.
30/05/2019.
Have just had my month Oxygen supply delivered, and though I was promised a bigger supply from Neurology RVH, this has not filtered down to my GP's yet.
I used 3 injections last night to stop extremely sore clusters.
So even though my clusters are down from 12 plus per day, I am still going through hell with the ones that are slipping through, which totally control all my life, because you can never plan anything, and almost have to carry tons of medication and the hope that not even one cluster will show up to ruin your day or night.
Because once one begins my body prepares for the extreme pain, trauma, distress and depression each cluster brings with it, whether they become full clusters or just shadows, which are just as bad at times, though without the extreme pain.
Shadows are when a cluster or clusters are lurking in the background and leave you feeling drained and expectant all day long.
I have also noticed that my neck is giving me a lot of pain throughout all of this cycle, so the neck cluster connection is always something to look into.
31/05/2019.
Once more I have had a very bad night last night being awakened 5 times with cluster headaches, one of which I injected to stop, as for the other 4 I bathed my head with ice cold water for about 1/2 hour or so before hopefully stopping it without injecting, then returning to bed for about another 1/2 hour.
Once more low pressure is well and truly in control in weather and with rain showers piling in constantly I am at a loss what to do.
Will have to contact Neurology again so if this cycle does not stop because I cannot live like this constantly in extreme pain, exhausted, traumatised, distressed and depressed.
The battle continues...
05/06/2019.
Had another minor surgery yesterday where my Neurologist is trying anaesthetic to numb the right side of my head in the hope of helping with my chronic cluster headaches.
But once more after this treatment when I went to be I began to have cluster headache after cluster headache, which has now added up to 7 in 7 hours, I am not going to sleep again even though I am exhausted, for I have noticed when I stay awake the cluster are few and far away, but when I fall asleep the cluster arrive one after the other, strange.
It seems when I relax the clusters are just waiting to pounce and they are also the worse in extreme pain they have ever been.
My Neurologist DR T PEUKERT of the RVH Belfast, Northern Ireland is doing his very best to help me with my extreme condition of cluster headaches but to see what is really going on, and the severity of my condition, he is going to have to bring me in to hospital to see how chronic my clusters are.
I dread falling asleep now for I know as soon as I do a cluster is going to arrive with its extreme pain.
15/06/2019.
Have had 24 full blown cluster headaches since Neurology performed extensive minor surgery 4 weeks and two weeks ago which completely used my Oxygen supply for the month.
Some cluster headaches I was able to bath away with ice cold water, but that requires sitting at a sink for hours in the middle of the night.
I am down to my last Imigran Injections which are not due again until the first week in July, which is also when the Oxygen is due.
I think Neurology has ok'd a bigger supply of Oxygen, but until now I have not received it.
Was cluster free last night, the first in months, but with low pressure still hanging about I will not hold my breath on that lack of clusters continuing.
TO BE CONTINUED...
SAN DOM DE NANTA VAN SAN NANTESS ESTANTO PEEPS?
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